Huntington's disease is a family disease... The person with HD, the children of a parent, the siblings, the spouses, the family members, all become the caregivers in some way. I am the child of a parent who had HD, the sibling to a brother with JHD, and a caregiver. Huntington's disease may affect my family, my life, and my day to day, but because of it I am stronger than I have ever been, and braver for it.
Monday, March 25, 2013
Brand new day, time to change the world.
Clearly this will be a positive post as today I learned my results for HD. It was blurted out by my genetic counselor like the words just could not stop themselves from running out of her mouth, "It's NEGATIVE!" We (mom, brother, boyfriend, grandma, best friend and myself) took about .002 seconds before we gasped in some air and began crying, sobbing like toddlers. This horrific experience will lead to amazing things. I know now that I will not become a person lost in my own body and memories, but by the grace of God have been given the chance to live without wondering "what if?".
I will spend the next several days I'm sure grasping the concept that I am no longer at-risk and am able to continue on this life with a renewed sense of self being and self worth. I know I will continue speaking out and raising awareness for family and friends who are impacted so deeply by HD and continue to fight the good fight. My thoughts, prayers and time will forever be devoted to those who must suffer for us to find a cure.
My emotions are in overdrive, I'm not sure if I should laugh, cry or go to bed.
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