Huntington's Disease brings up plenty of obstacles that get thrown in the way of day to day life for those with HD and the caregivers. Recently with my father, we have had emotional outburst after emotional outburst. A common occurrence at this point of HD. He understands he does not have much time left, he is 5'9" and down to nearly 115 lbs. He keeps losing more and more weight, but the nursing home has finally let him go back on mechanical soft diet instead of fully pureed food which he did not enjoy. He is mostly limited to sitting and laying down. He can't hold himself up or stand anymore due to all the muscle loss. Lucky for him he is still enjoying junk food and good New Mexico chili when we get him some. But he is no longer able to have dairy products because they were making him extremely sick, so no more ice cream or milk shakes for him.
My brother on the other hand seems to be having lost of anger issues that he just loves to take out on my mother and myself. We get the daily "I hate you, you're a B****, I'm leaving..." so on. He's become very emotionally abusive. I wish he could understand the face that he does not have much time left, be that it is years, but when a person has JHD they don't have the expected 10-20 like a person with HD, they have 5-7 years. I would like my brother to slow down, acknowledge how much my mom and I do for him, and stop worrying about those people in the world who really don't care at all about him. It makes it extremely difficult to love someone who everyday tells you they hate you and wish you were dead.
Well that is my short rant for now about life with HD.
