Introducing- Angela Mabry

My video on HD...

HD Poem

It is a butterfly
That sits so eagerly still
Buried deep in your mind
And in our hearts, so frail.
This butterfly is not colorful
Nor does it flutter its wings.
It calmly waits within your thoughts
Unseen, like many things.
Its hiding away
But makes itself known
With the slightest of ease.
The twitch of your fingers
Like its wing in the breeze.
The butterfly will slowly fade
And disappear in time.
But you will forever live on,
In our hearts,
And in our minds…

NYA!!!

I am now a member of NYA. For those of you who don't know what NYA is, it is the National Youth Alliance for HDSA. I am very excited about this... Now I am a member of the bigger picture for HD.

Father's Day, June 20th, 2010

My brother Bryan and myself took our dad out to lunch today for Father's Day... It seemed much more difficult than any other time we had taken him out. We were sure to take him somewhere a mess wouldn't be an issue, where it would be small so that no one would sit and stare at us while struggling feeding our dad. We had shown up at his nursing home to find him somewhat ready to go, despite the fact his pants they had him wear were both torn at the knees which was unacceptable. He enjoyed his outting very much, we also took him to Walmart to buy him a belt and a few pairs of shorts to wear on the hotter days here. I noticed that it was much harder to make out what he was saying, to understand him, to know what he needed or wanted. I wanted to break down and cry as he told my brother, "You'll hate having Huntington's..." As I spoon fed him his Father's Day meal... I was very thankful to have this day to spend with my father and brother, but how many more holidays would I have with either of them. A year from now who knows where we will be in our battle with HD? Happy Father's Day to you all...

Progress and Promise in HD

Meghan's Story...