Huntington's disease is a family disease... The person with HD, the children of a parent, the siblings, the spouses, the family members, all become the caregivers in some way. I am the child of a parent who had HD, the sibling to a brother with JHD, and a caregiver. Huntington's disease may affect my family, my life, and my day to day, but because of it I am stronger than I have ever been, and braver for it.
Thursday, August 12, 2010
HD Poem
It is a butterfly
That sits so eagerly still
Buried deep in your mind
And in our hearts, so frail.
This butterfly is not colorful
Nor does it flutter its wings.
It calmly waits within your thoughts
Unseen, like many things.
Its hiding away
But makes itself known
With the slightest of ease.
The twitch of your fingers
Like its wing in the breeze.
The butterfly will slowly fade
And disappear in time.
But you will forever live on,
In our hearts,
And in our minds…
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