Well hello again, it has certainly been some time since my last post in April of 2015.
As usual, there have been many changes in my life. Some good, some bad...
Since last I wrote my father, Edwin Mabry, passed away after a 14 year battle with HD on June 6th, 2015. I have attended 2 conventions since then in June of 2015 and 2016. I have bought a house and felt recently like I was finally getting my life back together.
The passing of my father took a toll on us as a family. It was a long week leading up to his last breath, he stopped eating and refused when we offered which lead my family and I to make decisions that were not something I ever saw myself making. He is now buried in Santa Fe, NM where we visit him often at the Veterans Cemetery.
Bryan, my brother, continues to progress with his JHD. Still smoking and acting wild, but he had a good Christmas and at this point what more could we ask for? His symptoms are getting worse, more and more difficulty walking and talking, and continuous fights with my mom.
This blog has been in some serious need of attention, whoever may be reading this... I hope to return to sharing my story in some way, the story that has inevitably changed throughout the years, from the young girl who was at-risk who went through the testing process, and came out the other side. As a caregiver who moved home, as a fundraiser and a leader in the HD community, to now just another HD person trying to find a different path that is more suited for my life right now. HD continues to be a large part of me, but as I've learned there is more to me than HD... and I hope to share that with you here.
