Help Team Mabry reach our goal!

My family and I are raising funds for our Team Hope Walk on May 10th in Albuquerque, NM. Please visit the link below for our FirstGiving page to donate. We are trying to raise $1,500.00 this year and greatly appreciate every penny!

Being a part of HDSA has been a life changing experience for myself and my family, and it could change your life too! By joining our team, sponsoring, or donating, you are partaking in something larger than you and I could ever imagine. My brother and father both are suffering from this devastating illness, and it is up to us to create the awareness necessary to find a treatment and cure for HD. Through our Team Hope Walk we hope to teach many new family members, friends, and colleagues about HD and help them learn to spread the word of HOPE. Please donate what you are able in order to help my family reach our goal of raising $1,500 for our event!

Team Mabry's FirstGiving Page

Time to stop and smell the roses...

I cannot believe it has nearly been a year since I last updated on my life with HD. Since my last post was about testing, and testing negative at that perhaps I should update my readers on what has happened since then. Since March of 13' I have done so many amazing things to help HDSA and the NYA (National Youth Alliance) spread awareness for HD. I have become the Affiliate President for New Mexico, I'm also on the board for the NYA and let me tell you it has been an awesome experience thus far. With my affiliate team we are planning several events to take place in NM this year, a Caring for the Caregiver's night, Education Day, Alive & Well viewing, Team Hope Walk and so much more. For NYA it seems to be a running pace, but I love a challenge. We've got the board back up and running, website constantly being updated and planning for the NYA Day and convention for youth's in June. Recently I've moved back home with my family and to add, so has my dad! If you do not remember he was living in a nursing home for the last five and a half years. I am now helping my mom with my dad and brother full-time on top of my job, and work with HDSA & NYA. It has been a struggle, but we are finally settling into a schedule and it's become a lot easier to deal with. As for what else is going on, it seems like there needs to be a vacation or at least a moment to be able to stop and smell the roses.